My Son's Story
In The Fight to Win Against Sickle Cell

The month of September was designated as "National Sickle Cell Anemia Awareness Month" in 1983, 37 years of designation. However, sickle cell anemia has plagued many lives for years. Sickle Cell Anemia (SCA) is a blood disorder that affects many in the world.

At the age of 31, my son is amongst those that it has affected since birth. He's a constant reminder to those around him that he's a fighter. The renewed energy he receives daily to continue the fight and encouraging attitude it takes to win the battle. "I am a fighter and I can win." That statement has been said by every individual that has SCA to encourage themselves. He and others could not have made it this far without the love of God, the love of their immediate family, and the SCA family that provides support to them daily.

Seven years ago we decided it will take more than the health professionals to educate others on the disease and I'm just one person, but I had to start somewhere to solicit others as we together can bring awareness for thousands of individuals in the fight.

This year is different we are facing unprecedented times in our city, state and country with the COVID 19 Pandemic and it has challenged our efforts to host the annual run in 2020, however, it has not disrupted our fight for the Sickle Cell community. We are still meeting and strategizing with the health professionals and others. The Annual RED RUN will be held in the Fall of 2021.

Thank You,
Rachelle Defillo