My Son's Story
In The Fight to Win Against Sickle Cell
The month of September was designated as "National Sickle Cell Anemia Awareness Month" in 1983, 41 years of designation. However, sickle cell anemia has plagued many lives for years. Sickle Cell Anemia (SCA) is a blood disorder that affects many in the world.
At the age of 34, my son is amongst those that it has affected since birth. He's a constant reminder to those around him that he's a fighter. The renewed energy he receives daily to continue the fight and encouraging attitude it takes to win the battle. "I am a fighter, and I can win." That statement has been said by every individual that has SCA to encourage themselves. He and others could not have made it this far without the love of God, the love of their immediate family, and the SCA family that provides support to them daily.
Seven years ago, we decided it will take more than the health professionals to educate others on the disease and I'm just one person, but I had to start somewhere to solicit others as we together can bring awareness for thousands of individuals in the fight.
In 2020 the COVID 19 Pandemic brought challenges to our efforts to host the annual run in 2020, however, it has not disrupted our fight for the Sickle Cell community. We continued to meet and strategize ways with the health professionals and others to further our impact. The Annual RED RUN will be held Saturday, September 7, 2024!
Join us this year for our 1st Annual Gala in October 2025.
NOTIFICATION: DUE TO THE WEATHER THE RED RUN IS SCHEDULED FOR SUNDAY, SEPTEMBER 8, 2024.
Thank You,
Rachelle Defillo
At the age of 34, my son is amongst those that it has affected since birth. He's a constant reminder to those around him that he's a fighter. The renewed energy he receives daily to continue the fight and encouraging attitude it takes to win the battle. "I am a fighter, and I can win." That statement has been said by every individual that has SCA to encourage themselves. He and others could not have made it this far without the love of God, the love of their immediate family, and the SCA family that provides support to them daily.
Seven years ago, we decided it will take more than the health professionals to educate others on the disease and I'm just one person, but I had to start somewhere to solicit others as we together can bring awareness for thousands of individuals in the fight.
In 2020 the COVID 19 Pandemic brought challenges to our efforts to host the annual run in 2020, however, it has not disrupted our fight for the Sickle Cell community. We continued to meet and strategize ways with the health professionals and others to further our impact. The Annual RED RUN will be held Saturday, September 7, 2024!
Join us this year for our 1st Annual Gala in October 2025.
NOTIFICATION: DUE TO THE WEATHER THE RED RUN IS SCHEDULED FOR SUNDAY, SEPTEMBER 8, 2024.
Thank You,
Rachelle Defillo
